I am Lujain

I am Lujain

November 20, 2018 in Light on Future

“I hate needles because they hurt me. I want to be a doctor so to inject children with needles kindly in a way that does not hurt them, and also to treat my mom when she needs a doctor.”  Lujain, an 8-year-old girl, says.

“I remember my kindergarten in Syria. I also remember my friends Farah, Maya and Limar. My friends were visiting me at home and we used to have fun and joy together. We also used to play hide and seek in the neighbourhood nearby.” Lujain says.

“I do not play much here in Turkey. I have friends in school but I spend much time indoors.

“I love drawing, I also love roses because they are beautiful and their smell is nice, especially jasmine and white roses. However, my favourite colour is red.” Lujain adds.

“Lujain suffers a disease called neurogenic bladder since the age of 3. Lujain’s bladder can function normally about 70 % and she needs catheterization regularly in order to empty urine completely.”  Lujain’s mother says.

Lujain came to Turkey with her mother two and a half years ago. Lujain’s father was disappeared in Syria and no news about him so far. The beautiful girl has 2 sisters and one brother who all live together in Turkey’s Antakya.

“I remember my neighbourhood, garden, and home in Syria. I love cats, rabbits and birds. I want to be a hairdresser, like mom, and also a doctor. My favourite colour is pink.” Siba, Lujain’s sister, 6 years, says.

“Seven months ago, Siba had a continuous fever, and I could not handle it so I took her to a doctor; after medical evaluation, we have known that Siba has a similar medical case to her sister Lujain.” The mother says.

“Now, Siba also suffers urinary incontinence and upper tract changes (dilatation) associated with a neurogenic bladder.

Medical management requires regular clean intermittent catheterization. It is hard for them and also for me but it is the only solution available for us currently. Some doctors said that suitable operations, in some advanced countries like Denmark, might help treat the cases completely but it is so hard to go there, let alone the expensive operations.” The mother adds.

Regardless of all the challenges and hard memories in Syria, the mother is dedicated to supporting her children who are full of life and ambitious to dream and work for a better future.

 

Interviewed by & photos credit: Sami Karaali

 

 

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